Processes in an experience-based co-design project with family carers in community mental health

Chisholm, L., Holttum, S. and Springham, N. (2018) Processes in an experience-based co-design project with family carers in community mental health. Sage Open, 8 (4). pp. 1-13. ISSN 2158-2440.

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Experience-based co-design (EBCD) is a service design strategy that facilitates collaborative work between professional staff and service users toward common goals. There is a lack of published examples of it in relation to family carer engagement within a mental health context, and little research exploring the mechanisms behind successful implementation.

The aim of this study was to explore the processes that facilitated EBCD with carer involvement. The study adopted a grounded theory–informed approach involving interviews with 16 participants of an existing EBCD project in an English National Health Service (NHS) trust, reflecting multiple stakeholders. EBCD can be thrown off track in two ways: conflict and getting “bogged down.” Leadership by project and design-group leaders could return group cohesion and maintain project momentum. The developed model reflects key processes.

Future research should examine EBCD projects with similar ranges of stakeholders and in contexts with different levels of organizational change.

Item Type: Article
Additional Information: This article is distributed under the terms of the Creative Commons Attribution 4.0 License ( which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (
Uncontrolled Keywords: Experience-based co-design; service user and carer involvement; grounded theory; mental health; community mental health team; England
Subjects: R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine > RA0790 Mental health services. Mental illness prevention
Divisions: Faculty of Social and Applied Sciences > School of Psychology, Politics and Sociology > Salomons Centre for Applied Psychology
Depositing User: Dr Sue Holttum
Date Deposited: 08 Nov 2018 17:27
Last Modified: 13 Nov 2018 11:00

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Last edited: 29/06/2016 12:23:00