Experiences of patients with traumatic brain injury and their carers during transition from in-patient rehabilitation to the community: a qualitative study

Abrahamson, V., Jensen, J., Springett, K. and Sakel, M. (2016) Experiences of patients with traumatic brain injury and their carers during transition from in-patient rehabilitation to the community: a qualitative study. Disability and Rehabilitation. ISSN 0963-8288.

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Abstract

Purpose: To explore the experiences of individuals who have had a severe traumatic brain injury (TBI) and their carers in the first month post-discharge from in-patient rehabilitation into living in the community. Method: Using a qualitative approach underpinned by critical realism, we explored the narratives of 10 patients and nine carers using semi-structured interviews approximately one month post-discharge.Thematic analysis was carried out independently by two researchers. Results: Firstly, perceptions of support were mixed but many patients and carers felt unsupported in the inpatient phase, during transitions between units and when preparing for discharge. Secondly, they struggled to accept a new reality of changed abilities, loss of roles and loss of autonomy. Thirdly, early experiences post-discharge exacerbated fears for the future. Conclusions: Most patients and carers struggled to identify a cohesive plan that supported their transition to living in the community. Access to services required much persistence on the part of carers and tended to be short-term, and therefore did not meet their long-term needs. We propose the need for a case manager to be involved at an early stage of their rehabilitation and act as a key point for information and access to on-going rehabilitation and other support services.

Item Type: Article
Uncontrolled Keywords: Community rehabilitation; integrated care; traumatic brain injury
Subjects: R Medicine > RM Therapeutics. Pharmacology > RM0930 Rehabilitation therapy
Divisions: Faculty of Health and Wellbeing > School of Allied Health Professions
Depositing User: Ms Jan Jensen
Date Deposited: 29 Mar 2017 08:59
Last Modified: 11 Dec 2017 13:58
URI: https://create.canterbury.ac.uk/id/eprint/15743

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Last edited: 29/06/2016 12:23:00