Development of a measure of caregiver burden in paediatric chronic kidney disease: the Paediatric Renal Caregiver Burden Scale

Parham, Rhian, Jacyna, N., Horthi, D., Marks, S.D., Holttum, S. and Camic, Paul M. (2014) Development of a measure of caregiver burden in paediatric chronic kidney disease: the Paediatric Renal Caregiver Burden Scale. Journal of Health Psychology. ISSN 1359-1053.

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Abstract

To inform the development of a measure of caregiver burden for carers of children with chronic kidney disease, interviews were conducted with 16 caregivers and 10 renal healthcare professionals. A pool of 97 items generated from interviews was reduced to 60 items following review. A piloting exercise provided evidence for the usability, readability and relevance of items and informed further adaptations resulting in the 51-item Paediatric Renal Caregiver Burden Scale. Further to assessment of its psychometric properties, it is hoped that that the Paediatric Renal Caregiver Burden Scale will serve as a useful measure of caregiver burden in paediatric chronic kidney disease.

Item Type: Article
Subjects: R Medicine > R Medicine (General) > R0726.5 Medicine and disease in relation to psychology
R Medicine > RC Internal medicine > RC0435 Psychiatry > RC0467 Clinical psychology
R Medicine > RJ Pediatrics
Divisions: Faculty of Social and Applied Sciences > School of Psychology, Politics and Sociology > Salomons Centre for Applied Psychology
Depositing User: Prof Paul M Camic
Date Deposited: 11 Nov 2015 14:09
Last Modified: 27 Jan 2016 10:26
URI: https://create.canterbury.ac.uk/id/eprint/13997

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Last edited: 29/06/2016 12:23:00