Factors associated with parental adaptation to having a child with a cleft lip and/or palate: the impact of parental diagnosis

O'Hanlon, K., Camic, Paul M. and Shear, J. (2012) Factors associated with parental adaptation to having a child with a cleft lip and/or palate: the impact of parental diagnosis. The Cleft Palate-Craniofacial Journal, 49 (6). pp. 718-729. ISSN 1545-1569.

Full text not available from this repository.

Abstract

Objective: To investigate the impact of parental diagnosis of cleft lip and/or palate (CL/P) on factors associated with parental adaptation to having a child with a cleft.

Design: A mixed-methodological, quasi-experimental, causal-comparative research design.

Participants: 27 parents born with a CL/P and 27 parents born without a CL/P completed the study measures.

Outcome Measures: The Ways of Coping Questionnaire, the Connor-Davidson Resilience Scale, the Interpersonal Support Evaluation List and the Posttraumatic Growth Inventory were included along with a researcher-designed cleft-specific questionnaire.

Results: The cleft-specific questionnaire revealed that parents born with a CL/P reported feelings of guilt significantly more often than parents without a CL/P. Parents without a cleft reported feeling anxious significantly more often than parents born with a CL/P. The qualitative aspect of the study yielded further between-group differences. How they felt that their own cleft-related experiences influenced their adjustment to having a child with a cleft emerged as a dominant theme for parents born with a cleft, while parents without a CL/P highlighted the importance of accurate information and positive interactions with clinicians in facilitating adjustment to their situation. No significant between-group differences were found on the standardized measures; however, the study's small sample size increases the risk of type II error and may account for the lack of significant findings.

Conclusions: These findings appear to provide support for the widely-held clinical opinion that parental diagnosis of CL/P impacts on how parents cope with and adjust to their child's diagnosis.

Key words: parental diagnosis, CL/P, adaptation, coping

Item Type: Article
Subjects: B Philosophy. Psychology. Religion > BF Psychology > BF0076.5 Psychology research
R Medicine > RJ Pediatrics
Divisions: pre Nov-2014 > Faculty of Social and Applied Sciences > Applied Psychology
Depositing User: Users 130 not found.
Date Deposited: 08 Feb 2012 11:19
Last Modified: 26 Jan 2015 09:57
URI: https://create.canterbury.ac.uk/id/eprint/10448

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Last edited: 29/06/2016 12:23:00